tag:blogger.com,1999:blog-8926442226374820318.comments2023-10-24T09:30:15.458+01:00Autism The Double-Edged SwordAnonymoushttp://www.blogger.com/profile/07116816692565039201noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-8926442226374820318.post-31265210258913537612013-04-05T23:14:47.104+01:002013-04-05T23:14:47.104+01:00https://www.change.org/petitions/office-for-judici...https://www.change.org/petitions/office-for-judicial-complaints-judge-roger-keen-apologise-and-commit-to-protecting-lgbtq-disabled-youth <-- A petition to get Judge Roger Keen to apologize for referring to the abuse of Simpson as 'horseplay', if you're interested. I'm sorry about CAMHS being unhelpful. I haven't had the best experiences with them either.sarahhttps://www.blogger.com/profile/02166788697713847246noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-85846270840414112552013-02-21T13:45:36.445+00:002013-02-21T13:45:36.445+00:00To the part you wrote about not wanting to come ac...To the part you wrote about not wanting to come across as just Ben's mom and always moaning...<br />From what I've noticed so far you are definitely more than just Ben's mom, its clear how much you love Ben but its also clear how caring you are to other people too. You are in pain but we still manage to laugh on our online scrabble games (you do need to start letting me win though!)<br />And you aren't always complaining either, you are an inspiration and I'm proud to have you as a friend xIzzynoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-8732750071393369872013-02-21T13:38:52.059+00:002013-02-21T13:38:52.059+00:00I think putting him on the child protection regist...I think putting him on the child protection register is a ridiculous move and I hope they realised their mistake and it never happened.<br />They need to provide help and support not make you feel worse xIzzynoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-24919692269625908292012-10-01T00:35:10.800+01:002012-10-01T00:35:10.800+01:00When my daughter would have an "episode"...When my daughter would have an "episode", one of us would put our arms around her from behind, holding her hands criss cross. We would sink to the ground, and put our legs around her as well, preventing her legs from kicking. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-61545281790308189882012-09-23T14:01:43.444+01:002012-09-23T14:01:43.444+01:00We had a CHAD SW who was useless even told us &quo...We had a CHAD SW who was useless even told us "you can't have respite and look for a residential placement for your Son", phoned my husband to ask him things when she'd already talked to me etc, questioned my son to ask if I "take him out" and "play with him". After over 6 years of this I complained and got another one. She is always "out of county" *Rolls eyes*Gwillihttps://www.blogger.com/profile/01104818464989434697noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-67470855634607000282012-07-10T09:12:21.160+01:002012-07-10T09:12:21.160+01:00I'm so sorry that this is happening to you. S...I'm so sorry that this is happening to you. She may be doing her job but I wonder how much she understands of autism and aggressive behaviour. We had a very difficult spell with our autistic son a few years ago (challenging behaviour, threats to self harm, running off) which required some restraining at times paticularly when he was a danger to himself and us. We were referred to CAMHS but they were no help. Except for medication, they didn't offer any practical help and so it was down to us to struggle through. We then went on a course run by the NAS on dealing with meltdowns; it helped a bit but it didn't really deal with the aggression. However, what was interesting was how many parents were asking for help on how to restrain their children safely. Unfortunately the trainer felt that they couldn't offer such support which disappointed many of the parents there. But it does raise the issue that this is an area of concern for many parents. Fortunately things calmed down for us but I still remember how difficult those days were and how hard it was getting practical help.<br /> <br />I'm sorry I can't be of more help but it may be worth contacting the NAS for some support on this. It also may be worth asking CAMHS for further advice, particularly when your son mentions his diferent sides of his brain telling him different things.<br /><br />I hope things improve for you soon.Debhttp://www.aspieinthefamily.comnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-75169059805828284142012-07-09T09:05:15.316+01:002012-07-09T09:05:15.316+01:00I really feel for you..I know that's no help b...I really feel for you..I know that's no help but I can't imagine life for you and no one else can either, social workers etc and that's the problem. When the professionals you're dealing with have no personal experience of autism or mental health it's just boxes to tick and paper work to fill in..violence is just a word to them as is restraining. I don't think it's wrong, you have to protect yourself and your son, and if they won't step in and show you another way what are you suppose to do?Www.autismandlove.comhttps://www.blogger.com/profile/11653607996285855835noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-92009103812289623582012-07-01T08:30:35.874+01:002012-07-01T08:30:35.874+01:00Beautifully written, from the heart. The letter to...Beautifully written, from the heart. The letter to family I could have written myself, I know those feelings exactly. I wish I could help the violence stop for you :( I hope you have at least one good friend though, who can share coffee and biscuits with you. never give up trying to claw a life back for yourself xStephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-26837095477494571822012-06-23T22:57:45.173+01:002012-06-23T22:57:45.173+01:00Thank you for taking the time to share your experi...Thank you for taking the time to share your experiences. I used to work on a playscheme for severely autistic children like your son and was attacked several times, and I can barely imagine what it must be like to live with that every day. You're right when you say there is no malice behind it but that makes it harder, somehow, I think. <br /><br />I hope you have a good support network around you and your husband and are getting some help from professionals with this. I know that sadly that support seems very thin on the ground, but I hope you are able to access something.Sallynoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-72489037783023190932012-06-23T22:54:15.980+01:002012-06-23T22:54:15.980+01:00This comment has been removed by the author.Sallyhttps://www.blogger.com/profile/16243823905285551105noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-2258055608442880042012-06-23T22:38:48.154+01:002012-06-23T22:38:48.154+01:00I have just this week had to back down and am wait...I have just this week had to back down and am waiting for my eldest autistic son to be put into care as he has hurt his sister severely. Like you, I have told nobody, I feel a complete failure as a parent but keep smiling on the outside because I don't want my other two kids seeing my pain. Reading your blog made me feel like I wasn't the only one going through this. Thankyou so much.Nikeenoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-54497469886873012352012-06-23T11:08:30.751+01:002012-06-23T11:08:30.751+01:00well done on tackling and writing on a very diffic...well done on tackling and writing on a very difficult subject. I know exactly what you mean about the violence and autism my youngest daughter is like that They seem to get super human strength from some where. I am pleased blogging is helping you , thats one reason I started to blog to help me cope. You are also helping others in similar situations .<br />I hope things get easier for youwendyhttp://www.savette.comnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-73309809282297466592012-06-16T19:54:30.555+01:002012-06-16T19:54:30.555+01:00You're definitely not alone! From my experienc...You're definitely not alone! From my experience with my brother and my Mum's friends with autistic children - the Mum's always get the brunt of it because they have that maternal caring instinct (not that Dad's care less) I'm sure you know but I always think that's because all children 'feel' a maternal love for their Mum's anyway that's strong even for 'normal' children so when emotions are hard to express/ know how to handle it will come out in violence. We always hurt those we're closest to after all.<br />Do you have symbols to hand around the home? This is common in most schools but my brother's aggression decreased with the introduction of symbols at home. Maybe a big board with looooads of velcro ones he can bring you/ you can bring to him 'First bath (symbol) then bed (symbol)' or 'Do not shout, mummy (photo) is sad (symbol)' etc This way he doesn't have to use eye contact either :)... <br />Sorry if you already do this :) just a thought!Stephanie Wendyhttps://www.blogger.com/profile/08583056950402016043noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-49385392234928550782012-06-16T10:10:28.665+01:002012-06-16T10:10:28.665+01:00I think once we get over the inital shock of not b...I think once we get over the inital shock of not being in Italy, we get to see the beauty of Holland. Plus we get to all if has to offer , great post <br /><br />wendywendyhttp://www.savette.comnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-40038158038127166582012-06-07T20:53:34.616+01:002012-06-07T20:53:34.616+01:00Hey Jen
Just enjoying reading your blog xxx
Has ...Hey Jen<br /><br />Just enjoying reading your blog xxx<br /><br />Has Ben ever had a sensory assessment? Some Occupational Therapy services offer this (not all) and I know some children who manage to control their impulsive / less predictable behaviours more easily once their sensory needs are identified and met or at least supported in some way....<br /><br />Hope to see you soon<br /><br />Sarah xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-5471094586787296252012-06-07T20:19:38.572+01:002012-06-07T20:19:38.572+01:00You are doing an incredible job hun and if Ben cou...You are doing an incredible job hun and if Ben could tell you he would say so too keep smiling and be strong <br /><br />Kerry xxkerry's card kreationshttps://www.blogger.com/profile/07710310196711485628noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-1623969594365495572012-05-31T21:29:50.049+01:002012-05-31T21:29:50.049+01:00I wish you all the best of luck with your half ter...I wish you all the best of luck with your half term break. Keep strong and trust that you *do* know best. :)Anonymoushttps://www.blogger.com/profile/04270837829075085803noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-68576063144494208932012-05-29T23:51:23.432+01:002012-05-29T23:51:23.432+01:00Oh bless you Jen. There is no answer. May be go sh...Oh bless you Jen. There is no answer. May be go short so Ben can't grab hold? I don't know either :-( xxdenisehttps://www.blogger.com/profile/12682304318255081599noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-38255282295685099872012-05-28T10:10:44.526+01:002012-05-28T10:10:44.526+01:00Oh wow Jenny am trying not to cry , you are a fant...Oh wow Jenny am trying not to cry , you are a fantastic mum and don't you forget. Sending you and Ben lmillions if hugs xxxx<br />Beverley NewburyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-87529306727973479542012-05-26T13:46:00.015+01:002012-05-26T13:46:00.015+01:00*hugs*
I wish I could say or do something magic to...*hugs*<br />I wish I could say or do something magic to help Ben. I'm 23 and I'm still coming to terms with my own Autism. I cannot imagine what effect my behaviour had on my parents. Fortunately I, like Ben, have parents who will never hold it against me.<br />*hugs*Anonymoushttps://www.blogger.com/profile/04270837829075085803noreply@blogger.comtag:blogger.com,1999:blog-8926442226374820318.post-35276728017985107892012-05-26T13:32:01.904+01:002012-05-26T13:32:01.904+01:00I read this with tears in my eyes.
*hugs*
*hugs*
*...I read this with tears in my eyes.<br />*hugs*<br />*hugs*<br />*hugs*Anonymoushttps://www.blogger.com/profile/04270837829075085803noreply@blogger.com